Understanding TBCD: A Rare Neurodegenerative Disorder
0:48
Understanding TBCD: A Rare Neurodegenerative Disorder
TikTokmiracleformax319.4K viewsJan 3, 2022
Understanding TBCD Genetic Disorder in Children
2:06
Understanding TBCD Genetic Disorder in Children
TikTokpoppy_and_kaylee108.4K viewsJan 19, 2023
Understanding Poppy’s Rare Genetic Condition: TBCD Mutation Explained
2:32
Understanding Poppy’s Rare Genetic Condition: TBCD Mutation Explained
TikTokpoppy_and_kaylee6.7M viewsJan 13, 2023
Understanding TBCD Gene Mutation and Its Impact
0:10
Understanding TBCD Gene Mutation and Its Impact
TikTokalifeforleo391.4K viewsAug 20, 2023
Understanding TBCD: A Journey with Houghton
2:51
Understanding TBCD: A Journey with Houghton
TikTokholtynsmomma149.6K viewsMay 16, 2023
Understanding TBCD's Impact on Max and Awareness
1:22
Understanding TBCD's Impact on Max and Awareness
TikTokmiracleformax92.6K viewsMay 9, 2023
3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
1:02
3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
YouTubePoppy&Kaylee25.8K views2 months ago
0:11
TBCD: You Are Not Alone if You Can't Dunk | Basketball Video
TikTokmrbeardeddragon407K viewsJan 17, 2024
1:07
#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
TikTokmiracleformax1.3M viewsMay 1, 2023
6:50
A Day in Our Lives: Managing Leukodystrophy
TikTokholtynsmomma3.5K views5 months ago
1:01
TBC Fishing Daily Rewards!
YouTubeKaghoegaming2.3K views4 months ago
4:34
Understanding Leo's Battle with Leukodystrophy
TikTokpoppy_and_kaylee435.7K viewsJan 17, 2024
1:01
3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
TikTokpoppy_and_kaylee3.1M views2 months ago
1:54
One year….one painful hard heavy year but one year closer to being reunited #childloss #bereavedmother #tbcd #leukodystrophy #tbcdawareness #griefjourney #oneyear
TikTokpoppy_and_kaylee14.6M viewsMay 1, 2024
6:01
Quick answer- her body went from small spots of pneumonia to only one of her lungs having maybe 25% function. Her seizures were so frequent and almost impossible to control. Leukodystrophys cause the body to not function like a healthy body. Her muscles, organs, and brain couldn’t recover or heal. #leukodystrophy #leukodystrophyawareness #tbcd #tbcdawareness
TikTokpoppy_and_kaylee3.3M viewsMay 29, 2023
1:25
Understanding Palliative Care for Rare Genetic Disorders
TikTokpoppy_and_kaylee1.4M viewsMar 19, 2023
0:53
Poppy's Journey: Navigating Regression in TBCD
TikTokpoppy_and_kaylee621.5K viewsApr 3, 2023
0:09
#raredisease #tbcdawareness #geneticdisorder #neurologicalcondition #regression #awareness #bringawareness #tbcd
TikTokpoppy_and_kaylee518.4K viewsFeb 24, 2023
1:39
Thank you @Miracle for Max 🩵 So much of TBCD’s community and strength comes from you. #tbcd #tbcdawareness #leukodystrophy #leukodystrophyawareness #nationwidechildrenshospital
TikTokpoppy_and_kaylee328.9K viewsDec 28, 2023
7:31
A look inside our home #poppysstory #part8 #rarediagnosis #tbcd #marriage #familylife
TikTokpoppy_and_kaylee125.4K viewsMay 7, 2025
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